Hey everyone, welcome back to my blog; today, we are diving back into a series close to my heart Adenomyosis The Truth Behind The Pain. If you have any questions, please be sure to leave a comment, and if you want to read more about adenomyosis, click here https://humblesoullifeofajuicer.blog/2020/11/18/ibs-and-its-connections-to-adenomyosis-endometriosis/.
Would you like us to use your real name or a fake one?
Real is fine – Angela Arnold Ross
Where are you from?
New Jersey by way of Australia
When were you diagnosed? How old were you?
Officially diagnosed about 2 years ago at 42 years but I have been fighting to know what was wrong since I had my daughter by c-section at 38 years.
How long have you had Adenomyosis?
I bet I had it all my adult life – laparoscopic surgery in Australia at age ~19 years for severe “period pain” (think falling to the floor in pain) when I exercised and I think the MD said “endometriosis” then went on the pill until I had my daughter then it got worse from there – I always had bad periods but the pill helped. I fought with my OB/GYN when I moved from NYC to NJ after the baby to find out what was wrong as I was getting worse and worse.
Do you have children?
One daughter almost 6 (going on 15 😊) On birth control or any medicine for ando? I tried IUD and went crazy on the hormones, tried low dose oral contraceptive as a last resort to surgery and then I think it made it worse! Or have you had a hysterectomy if so when? Hysterectomy was scheduled for 7/16/2020.
If you have had a hysterectomy do you still have symptoms? What are your symptoms?
Before surgery: lower belly pain (stomach hurts to touch), bloating, back ache, depression, now the pain is so bad it is almost every day and I cannot work out as jumping up and down hurts )
What do you take for pain, nausea etc?
I tried Tramadol, anti-inflammatories, medical marijuana but nothing has worked.
How long did it take you to be diagnosed?
5 years of me fighting for diagnosis- all scans normal but have all clinical symptoms except heavy bleeding.
How has adenomyosis impacted your personal life?
A lot – I yell at my daughter more when I am in pain (it is now chronic so it affects my mood a lot); I am often going back to bed to lie down as I feel terrible (with a hot water bottle) and cant look after my daughter, my daughter now knows that “mommy’s tummy is sore”, Mom is sick all the time.
What’s craziest/dumbest thing some has said to you?
My OB/GYN said “I have never heard of a pelvic pain/endometriosis specialist” – “maybe it is GI issue” (I have IBS and I know it was not GI) … when I told her the diagnosis from the other MD and refused to go to her for my annual “well …. have you ruled out fibromyalgia, pelvic congestion syndrome …” they were two diagnoses she never mentioned in 5 years ….I fired her as soon as I found my new surgeon at her hospital who SHE (amd he) knew!!!
Any other comments or questions you would like seen answered or heard ( what would you like the world to know about Adenomyosis)- the diagnosis is real, you might not look sick but you know your body
What would you like to see on the blog? Anything helpful around follow up after surgery, I am interested to know if I have any pain after surgery
What diet do you follow? Have you changed it at all since being diagnosed? I haven’t changed my diet … I likely will have to after surgery – I am pretty fit (normally)